Reply #27: So sorry to hear it [View All]

I do understand of what you speak. I have Fibro (and CFIDS) and am pretty disabled with it (mostly due to the latter), and am not able to do much at all, even my own shopping. Vacuuming the apartment means I generally can't do anything for the rest of the day (except to heat up something for supper).

One very important thing to do is take something for sleep if your insomnia gets bad. Some dr's don't want to prescribe sleep meds on a regular basis. I've been taking them for years, and if I didn't, I'd be bedridden again. So, if you need it, don't hesitate to try some. I'm in Canada and the meds I use (imovane, tryptophan) you can't get in the States, but they help me fall and stay asleep without leaving me feeling woozy in the am. Good sleep is vital, as I'm sure you know. ;-)

If you eat or drink anything with aspartame or other artificial sweeteners in it, stop. People with Fibro are very sensitive to those ingredients.

Have you done an elimination diet? Some people feel better without certain foods...I found gluten (though I'm not celiac) and dairy to be problematic for me, and feel much better with them not in my diet. Those two, along with soy, corn, eggs and nightshade veggies (potatoes, peppers, eggplant, tomatoes) are common allergens. You may find that you become sensitive to certain foods. Sugar is another thing to avoid.

Also, many people feel better with a higher protein diet (not Atkins) as carbohydrates are often not metabolized properly.

I am able to do some light yoga (the sittingstretches, nothing that I need have to support myself) and I meditate...those two can be very helpful. Tai Chi can also be helpful to some. I also found acupuncture of immense help, but unfortunately can't afford it anymore. :(

Nutritional supplements are often needed, such as a good multi, Coenzyme Q10, fish and evening primrose oil, undenatured whey or glutathione precursors, alpha lipoic acid, extra B vitamins, milk thistle or another liver cleansing formula, and digestive enzymes.

www.immunesupport.com is a wealth of information. And there is a disability forum here as well, if you haven't already visited.

Good luck, my friend. It is not an easy path. :hug: